Peter’s Hospital Diary

No, not the weather, but me yesterday as I got back in the water for some diving. My medical certificate came through this week, so it was the first opportunity to get back into the water since my relapse. I did do a bit last year, but tis was a chance to do some drills […]

Not a lot to report on the health front – still popping my four tablets a day without an apparent side effects. On a health related note though, I have been told that I can continue diving and Im waiting for my medical certificate as I write this. In other news, I spent a fun […]

So a quick trip into Southampton today, where I saw Professor Davies – the last of the three haematology consultants and someone I hadn’t seen before. They all seem very keen to see me – or maybe they draw lots and he got the short straw. Interestingly he trained with Dr Welch, the last consultant […]

It’s a lovely sunny day outside, after a mixed week, both of weather and activities! You may recall from the last post that although two months of Ibrutinib had been prescribed, only one had been dispensed. I sent an email to the Clinical Nurse Specialists who rang back to say that at the time the […]

Its been a few weeks since I last posted, and I’m glad to say that all is still going well, with my next check up next week. However the bank holiday means that there will be a five week gap between appointments and prescriptions and I run out of medication next weekend. This was anticipated […]

I received the results of my blood test late Tuesday afternoon (after my post) and all is good! The blood counts are fine, with the lymphocyte count falling, and the chemistry is good with the remaining liver marker back in spec! My creatinine levels were slightly up on last week (note to self – drink […]

And 19 days since I started the Ibrutinib! The visible enlarged lymph node is no longer visible, and I’m not sure that I can still feel it under the skin, although surface anatomy is not my strong point :)! But good news anyway! I had a blood test yesterday, but I have not had the […]

Its been a few days since I lat wrote, simply because there hasn’t been a lot to report! I seem to be tolerating the ibrutinib well, and wahat was a visible abdominal lump – an enlarged lymph node – has shrunk back to the extent it is no longer visible, although it can be felt […]

I was hoping to have started the Ibrutinib yesterday, but when I rang the pharmacy I was told that the prescription hadn’t been written and there was a delay “with the form”. This was slightly worrying because I was getting to the end of the steroids and I needed new supplies! However a quick call […]

I had a quietish weekend after the ‘excitement’ of the last three weeks – my parents visited which was good, and I spent some time getting the house back together after my lengthy absences. But in reality this was just marking time for the follow up appointment scheduled for yesterday afternoon, when I was hoping […]