Monday 6th May… Bank holiday Monday

Its been a few weeks since I last posted, and I’m glad to say that all is still going well, with my next check up next week. However the bank holiday means that there will be a five week gap between appointments and prescriptions and I run out of medication next weekend. This was anticipated by Dr Lown at the last check up and my last prescription was written for two months supply, but only one month was dispensed, so I will be asking for an early prescription so I can collect it (and do a blood test) before the next clinic.

I was reading back through the recent posts today, and I noticed that back in January I said that there were two possible diagnoses – one was that the mantle cell lymphoma had developed into a Blastic form (BMCL) or it was a new lymphoma, Diffused Large B Cell Lymphoma (DLBCL). I didnt explicitly say that the diagnosis waa refined down to the Blastic form of mantle cell lymphoma which is why I was a candidate for the Ibrutinib.

Meanwhile, I had a great Bank Holiday Weekend, with a 60th Birthday party of a friend from my university days! Great party with some other uni friends there, so a lovely catch up. I was thinking on the way back that I am vey blessed to have such supportive friends who are still in touch with me (and that I am still around to see them!!). I have another reunion with the friends I shared a flat and house with in those days, so that will be a good weekend later this year.

I must also thank other friends (some of whom live locally) who have been very supportive and of course my lovely children. 🙂

So … Onwards and Upwards! 😀

2 Responses to “Monday 6th May… Bank holiday Monday”

  1. Liz on 10 May 2019 at 8:31 pm #

    Just caught up on this news. Glad you had a good time! Will keep an eye out for the appointment results!

    Lots of keep love xxx

  2. Peter on 12 May 2019 at 10:48 am #

    Thank you!


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