Archive for January, 2019

Tuesday 29th January…Update and good news!

I had a quietish weekend after the ‘excitement’ of the last three weeks – my parents visited which was good, and I spent some time getting the house back together after my lengthy absences. But in reality this was just marking time for the follow up appointment scheduled for yesterday afternoon, when I was hoping […]

Saturday 26th January…And home

Yes! Made it home! It did take 4 1/2 hours for my ‘party bag’ to be delivered, which was frustrating, but at least I had ordered an evening meal so I didn’t go hungry, but I was getting a little impatient! But Katie and Chris collected me at 7pm and whisked me home where I […]

Friday 25th January … Home?

And that is the question of the day!  Will I be allowed home for the weekend, to return as an outpatient on Monday? That will depend on the blood results, due later this morning, but meanwhile I thought I’d share a selfie taken last night… Not looking too bad though I say it myself! It […]

Thursday 24th January… A disturbed night!

I was still in a bit of pain when I settled down, lots of gurgling but not much relief,  I had something to damp down stomach action and a bit more oromorph, which helped dull the pain, but of course did nothing to alleviate the underlying cause. But all went reasonably well (although very broken […]

Wednesday 23rd January … Impatient Inpatient

I’m beginning to get impatient now – I want to start the treatment!  I had a visit from  junior member of the team today saying that they would probably start tomorrow – nothing today apart from more fluids. i haven’t felt too good today, stomach pains (‘gripes’) and a feeling of bloated ness or trapped […]

Tuesday 22nd January…Forwards

I must say that I went to sleep (and woke up) feeling  good.  I think the last few days have been frustrating, patching up the symptoms of the underlying problem without tackling that problem itself.  I know that there are good reasons for that (partly because the treatment plan isn’t clear cut) but now that […]

Monday 21st January… A new era?

Well, what started as another  ordinary day turned out in quite an unexpected way! I woke earlier than normal with quite severe stomach pains, almost stomach cramp.  That was followed by a call from a nurse specialist from Southampton asking when I was going for my blood tests – we arranged 12ish. Katie called to […]

Sunday 20th January… and out!

A quick but productive stay at Southampton, but I am now safely back home! To summarise yesterday, after I was admitted, I had a litre of saline with Magnesium overnight. Interestingly I was on the bone marrow transplant ward, all individual rooms, so I had quite a quiet night. Funnily enough, I was a floor […]

Saturday 19 January …. Calling Southampton!

Yes indeedy – I am currently an in-patient at Southampton General! For the curious among you, let me explain… Yesterday I noticed a bit of swelling in my ankles (pitted oedema) so I gave the emergency number a Guys a ring. It turned out that I had had a follow up appointment there yesterday, but […]

Thursday 17th January… and home!

Yes, I was discharged yesterday, not without some delay though! The kidney function test completed at just after 2pm (results to follow) just as a friend, Mark, turned up to visit. (Long term readers of this blog will know Mark as a fellow blogmaster who first set up the blog for me in 2006 as […]

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