Archive for January, 2019

Wednesday 16th … Scan confusion and home?

OK, my bad! What I thought was going to be a PET scan turned out to be a kidney function test! So I put myself on nil-by-mouth from 5 am for no reason and missed breakfast unnecessarily! So a simple test, a radioactive tagged substance is injected into the blood stream and then blood is […]

Tuesday 15 January … Part 2

Big update deserving a post of its own! Just had a visit from my consultant, David Welch. Good news is that my blood chemistry is significantly improved with creatinine down to 140 (still above my baseline of 130 which itself is higher than the average) at the Ca is down to 2.73 (not sure of […]

Tuesday 15th January … Happy birthday to my Granddaughter and NHS crisis averted!

First of all a very Happy Birthday to my Granddaughter – 12 today! Now for the NHS crisis! There has been a major shortage of PJ trousers over the weekend, plenty of tops, but no trousers! Fortunately a new supply has been found before this was leaked to the red top press and all is […]

Monday 14th January 2019… A Sunny Day!

It indeed sunny and I have found a way of uploading photos from my phone, so I will go and add some to previous posts! This the view from the sunny side of the ward this morning! I woke up early at 6, after a fairly restful night, for today’s steroids! Tumour definitely shrinking. A […]

Sunday 13th January … More News – and An Intesting Fact

I was going to start this with an interesting fact (I like to be informative!) But I had a consultant visit last night – a bit too late to update last nights post which was already a bit long. So, after the registrar, the consultant came round (maybe the registrar told him I was asking […]

Saturday 12th January … Mixed news

I had a reasonably good sleep last night, punctuated by the usual ward sounds, observations etc. I was woken by the breakfast trolley – I am definitely developing the munchies! Then followed the usual routines; more observations, bloods and my second dose of prednisolone! All done and then a quick visit by a haematology registrar […]

Friday 11th January… Treatment starts!

As I said yesterday, pre-treatment started yesterday, but this morning I had the first dose of steroids, 30mg of prednisolone. Not the largest dose but that is to keep the rate of breakdown low for the reasons I outlined yesterday. But prior to that I had an echocardiogram just to ensure all the valves are […]

Thursday 10th January – No release but some good news!

I was still hoping to get some time out today to nip home, but it was not to be! I have been on fluids most of the day, apart from a brief interlude when I had a visit fro one of the medical team who told me I needed to have a bone marrow biopsy! […]

Wednesday 9th January… Day release?

I’m writing this a bit earlier today – when I first started it back in 2006, most of noteworthy activities were in the morning, but this stay has had things going on pretty much all day. But I digress 🙂 … I had a quiet night (apart from at 6am when the blood pressure machine […]

Tuesday 8th January … not good news

Just after I published yesterday’s blog, I had a visit from the haematology consultant to say that the results were back from the scan and they showed several lump nodes were lighting up. These are in a band round my abdomen and along the top of my bowel . Just got good measure, there was […]

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