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Tuesday

Apr 4th 2006Post Hospital

Suffering a bit at the moment – I am covered in what looks like a nettle rash, and major sniffles. I’m not sure if the sniffles are a cold, or anything to do with the rash, whch I hope is GvHd (The alternative would be an allergy to one of the anti-biotics I am taking). I did ring Guy’s this morning for some advice – their opinion is that it is GvHd, but as I am going to visit the haematology department after seeing the radio-therapist tomorrow, they are happy to wait until then! However I suspect I will be coating myself with topical steroids tomorrow evening!

Ah well, no-one said this would be easy! Anyone got a back scratcher???

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8 Responses to “Tuesday”

  1. Richard Bushrod on 04 Apr 2006 at 4:21 pm #

    Shame, horrid to be iching all over…….shame it cannot be tropical instead of topical………

    If you put your web-cam on your laptop, facing the wrong way, mount the computer on the edge of a table or ideally higher surface with the keyboard away from you, adjust the angle, turn round and gently do a Baloo against the camera……..relief 🙂

  2. Peter on 04 Apr 2006 at 5:04 pm #

    Thanks Richard, maybe FF30! Tried the laptop tip… er… anyone know of a good osteopath… ? 🙂

  3. Richard Bushrod on 04 Apr 2006 at 9:20 pm #

    It was Factor 30 that brought on the idea!!!

  4. John on 04 Apr 2006 at 10:47 pm #

    hi peter i agree mate GVHD sucks i’m 18 months Post transplant and still suffering from GVHD of the skin which is a real bummer i know. I found a mixture of a base cream with Menthol does the trick at relieving the itchyness. hope they sort it out for you sooner rather than later.

    John

  5. Elspeth on 05 Apr 2006 at 5:34 pm #

    Am a bit behind with reading the blog, (delighted that it continues!) You will have had the next appts etc, so I look forward to the results. Sorry about the itching – the only good thing is the thought that they’re GVL working away – I remember an all over rash (due to some other allergy) and I had only to LOOK at cheese (which I love) to feel a surge of itchiness! Slap on the steriods (when permitted), and enjoy the relief – what about an antihistamine or will that be taboo? Progress, progress and the suffering to get there!
    L’n’Hs
    Elspeth

  6. Peter on 06 Apr 2006 at 8:19 am #

    John – thank you for the comment – unfortunately I deleted it by mistake while it was in moderation! Slapping on the steroids as I type!

  7. John on 06 Apr 2006 at 3:34 pm #

    Hey Peter no worries mate. thats my usual trick that deleting posts ha ha !! i find my problem is when i try and type with big dollops of cream all over my hands as it tends to make your fingers slip lol.

    I like your spirit too and your Gran was spot on too, good inspiration for everyone.

    John

  8. Peter on 07 Apr 2006 at 8:11 am #

    John – thanks for getting back – know the feeling with the cream! Got the right button this time! 🙂