Friday 4th January – a bit more news

Just after I had written up the blog for yesterday, my chauffeur driven wheelchair was summoned to to take me for an ultrasound scan. Once I had advised the radiologist to stop looking for my spleen (it was removed 19 years ago!) I asked if he cared to share an opinion, he confirmed that there was indeed a mass (!) but more importantly it didn’t seem to be attached to any abdominal organs. He did think it was probably lymphoma related, with an outside chance that it could be a sarcoma.

After transport back to the ward, Rachael popped over to get a list of things I might need and just in time for the consultants visit. The haematology team are definitely veering towards the lymphoma route. However they want to do a biopsy and PET scan first – probably on Monday, so I will be here over the weekend!

I slept fitfully last night – about 2 hours at a time interspersed with a race to the loo complete with IV stand!

Consequently I was a tad washed out this morning and spent most of the morning dozing! (Well I can, so why not?) A junior member of the team popped in to explain was was happening and to confirm the the CT scan results correlated with the ultrasound.

The blood test this morning should that the creatinine and calcium levels are moving in the right direction, and my blood pressure is the highest it has been for some time!

Rachael came in this afternoon with a few goodies shower cream – much better than the China Pharma stuff I was given, some squash – makes drinking water far more pleasurable and (most important) a phone charger!

One big improvement is the WiFi coverage! If you read back to 2006 I was using a dial up modem through the hopital switchboard whoops!) or pointing the laptop out of the windo to latch onto any unprotected WiFi network :).

WiFi point above the bed opposite!


Only thing is that the WiFi won’t let me log into the blog so 4G to the rescue!

And I spotted this at the top of the building – I think it’s a mobile phone mast can’t quite be certain

One other thing I forgot to mention is that a shot of LMDH (low molecular ddensity heparin) is given at night to reduce the risk of blood clots. As an old hand at self administering those, it’s been fun getting my eye back in!

I’m now having fluid out put monitored, roll out the collecting bottles! Actually quite good as I don’t have to dash to the loo with IV stand in tow!

I feel somewhat relieved that we are closing in on a diagnosis as it means treatment plans can be formulated. Of course it’s a blow as well, life has taken a big turn for the better, so I hope that this is just a blip on that path.

So… Onwards and Upwards

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