Peter’s Hospital Diary

And it’s a drizzly overcast day here! I’m also reminded by Richard that it is Shakespeare’s birthday too. Feeling a bit rough today – since stopping the steroids on Thursday, the GvHd seems to be kicking back in – probably a good thing, but a bit uncomfortable. I have a mental image of sword fights […]

It’s a lovely warm sunny day today – it did start overcast, but the sun has broken through at last! I had a good day yesterday – I ventured out for a pub lunch with Mark and enjoyed a pint which almost tasted like a pint should! However I felt a little off colour this […]

Not really much to report – apart from a dreary rainy day! (Although it does look as if it is brightening up a bit now) I took the last of the oral steroids this morning – they seem to have done the trick in damping down the GvHd (just hope not too much!) and I […]

Well if the PET scan facility was an airline, I think I’d be a gold card holder – the general consensus seems to be that I am close to the record holder for PET scans at St Thomas’s! As PET scans go, it was pretty routine, the details are in the side links and other […]

Happy Easter! The steroids seem to be doing their stuff – my face has been a lot less puffy, and the Piriton continues to help relieve the itching and ensure a good night’s sleep! However I have now lost the remnants of last year’s sun tan! My sense of taste is still out of sorts […]

Another check up yesterday – and I needed it! The palms of my hands were a livid purple yesterday morning, prompting the response from Linny (consultant) “Yes, that’s definitely GvHd!” She then went on to prescribe another small pharmacy including large tubes of the topical steroids, some oral steroids, and some Piriton (an anti-histamine, familiar […]

A fine and sunny start to the day (albeit with a cool breeze). I’m not feeling quite as good as yesterday, partly because as the day got colder and wetter, my nose got runnier and my face sorer! I still itch all over, althgough some of the redness of my skin seems to be lessening. […]

Feeling a lot better today, although my palms are quite sore, as are the soles of my feet. I am still a bit itchy but it doesn’t seem quite as bad as it was. My face is still a bit sore (shaving was a little unpleasant!) but the swelling of my lips and eyelids has […]

Mixed day today – I woke up feeling pretty grim, the blisters and iching on my face had subsided a bit, although my face was still puffy, and the bright crimson effect and little blisters had spread to my legs – and I still itch everywhere else! I felt very thirsty too. However there were […]

Forget to mention that yesterday was 77 days post transplant – time flies! Feeling a bit better this morning – the topical steroids are working, although how much is being absorbed and dampening down the GvHd systemically remains unknown, and of course it doesn’t want to be dampened too much to inhibit the wanted Graft […]