Saturday 17th August … Back on D3…

Just seems I can’t keep away from D3!

But it has been a couple of days since I last posted, so let me fill in the deatails!

I was moved to my side room later on Wednesday, very nice too, but then the swabs came back as clear. I was told that it was likely I’d get one night in there, but alas it was not to be and I was moved up to ‘home from home’ back on D4.

My blood pressure stayed a bit low for the the last three days and my temperature remained variable, so I remained on the IV fluids and antibiotics until Friday, when I switched to oral antibiotics.

I had a ward round on Friday and the plan is to restart the ibrutinib as my white cell count is starting to creep up. However ibrutinib affects platelet count and as I had the bleed after my fall, a blood clotting specialist is being consulted. However I may be out on Monday.

Meanwhile, my parents have come down and I have had several visitors – all much appreciated!

I also had a visit from an occupational therapist (Linda) and we had a chat about the future with my impaired eyesight. We went for a walk down the corridor, which wasn’t difficult in itself, but anyone approaching from my front left hand side suddenly disappears when the are a about three feet in front of me. Similarly, any one overtaking me on my left side doesn’t appear until they are about three feet past me. Something I will adapt to, I’m sure. I am also getting some visual disturbance as my brain tries to make sense of the missing information. Just to restate, this isn’t an eye or optic nerve problem, but a visual processing issue.

Longer term I need to consider the loss of my driving licence on my social life and steps I can take to mitigate the impact.

I still feel quite tired, but I don’t expect any change there until I get home.

So, on many levels, I need to continue to progress Onwards and Upwards, but lots to think about! 🙂

2 Comments »

2 Responses to “Saturday 17th August … Back on D3…”

  1. Gill on 17 Aug 2019 at 17:03 #

    If you can eventually get there, we found the eye A&E pretty good but make sure you take some entertainment – the wait was not a short one.

    Haven’t I told you about my law of ‘C’s’ You need people who Care, are Competent, who Communicate and Co-ordinate – any one (or more of course) missing, and you get Crap.
    A fairly common experience I find when dealing with hospitals.

    Remember me to your parents. Where do they live now, still Sutton?

    Whatever else, have your good looks returned?

    I also seem to have spent this week fighting low level infection. I am definitely not bringing it anywhere near you, but thoughts with you all the time.

    love Gill x

  2. Peter on 18 Aug 2019 at 10:04 #

    Hi Gill,

    Sadly (?) it’s not an eye problem. Sensors and transmission systems (eyes and optic nerves) are all working correctly. The problem is with the visual cortex – the signal processor – that processes those signal befor presenting them to the cognitive functions of the brain (putting it in engineering terms) so the bit of the visual cortex that processes the left hand peripheral vision was damaged by the effects of the blood clot.

    But the bruising has gone, and apart from a slightly wonky nose, that is all sorted!

    Love,

    Peter
    Xx