Archive for July, 2019

Thursday 4 July… treatment starts!

Mixed day today I woke up in the night with a numb mouth (almost like a dental injection effect) and again when I woke. Although it soon wore off, I mentioned it to the registrar who launched into a stroke/TIA (transient ischaemic attack – medical term for a stroke!) assessment. Happily it should nothing untoward […]

Wednesday 3 July… All change!

And about half an hour after I wrote yesterday’s post, I had a call from the Clinical Nurse Specialist (CNS) – this time from Amy. The muli-discipinary team had discussed my case and come to the conclusion that the spike was caused by the rituximab and so rather than proceed with the vinblastine, I should […]

Tuesday 2 July… Rollercoaster time

Well, an emotional roller coaster! I had a quiet weekend – still a bit shocked and upset that the ibrutinib had stopped working after on 4 months. I suppose I should have remembered that studies have shown that it is less effective in relapsed cases. I slept badly over the weekend but I was hopeful […]

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