Archive for April, 2006

Friday… t+99

Well, how to follow yesterdays news! I must say I was pretty elated after getting the news from Sala! I went on to see the consultant (Linny) who did say that it is difficult to quantify exactly how much it has shrunk, but for me the important thing is that there has been a dramatic […]

Thursday – results day and t+98

Good news! As I walked into the clinic this morning, I saw Sala, the senior reg. He had a big smile and told me that the PET scan result shows an 85% reduction in activity. The value of 85% is a bit empirical but the imporant thing is the trend! I’m off to the radiography […]

Tuesday

It’s cold today! However the good news is that the GvHd has settled down a bit and I am feeling much better than I was on Sunday! Yesterday was a good day too. I have an appointment for the radiography planning session (if it is needed – think positive) which will be this Thursday (it […]

Sunday – St George’s day!

And it’s a drizzly overcast day here! I’m also reminded by Richard that it is Shakespeare’s birthday too. Feeling a bit rough today – since stopping the steroids on Thursday, the GvHd seems to be kicking back in – probably a good thing, but a bit uncomfortable. I have a mental image of sword fights […]

Saturday

It’s a lovely warm sunny day today – it did start overcast, but the sun has broken through at last! I had a good day yesterday – I ventured out for a pub lunch with Mark and enjoyed a pint which almost tasted like a pint should! However I felt a little off colour this […]

Thursday

Not really much to report – apart from a dreary rainy day! (Although it does look as if it is brightening up a bit now) I took the last of the oral steroids this morning – they seem to have done the trick in damping down the GvHd (just hope not too much!) and I […]

Tuesday – 14th PET scan!

Well if the PET scan facility was an airline, I think I’d be a gold card holder – the general consensus seems to be that I am close to the record holder for PET scans at St Thomas’s! As PET scans go, it was pretty routine, the details are in the side links and other […]

Easter Sunday

Happy Easter! The steroids seem to be doing their stuff – my face has been a lot less puffy, and the Piriton continues to help relieve the itching and ensure a good night’s sleep! However I have now lost the remnants of last year’s sun tan! My sense of taste is still out of sorts […]

Friday… T+85 (and C+4)

Another check up yesterday – and I needed it! The palms of my hands were a livid purple yesterday morning, prompting the response from Linny (consultant) “Yes, that’s definitely GvHd!” She then went on to prescribe another small pharmacy including large tubes of the topical steroids, some oral steroids, and some Piriton (an anti-histamine, familiar […]

Tuesday… C+1

A fine and sunny start to the day (albeit with a cool breeze). I’m not feeling quite as good as yesterday, partly because as the day got colder and wetter, my nose got runnier and my face sorer! I still itch all over, althgough some of the redness of my skin seems to be lessening. […]

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