Sunday… t+17

I’m writing this a bit later today, partly because Sundays are a bit quiet and there wasn’t much new to write about this morning, and partly to try and ‘break the mould’! You also had the second post yesterday about the delay in letting me out. I must admit to bing a bit crestfallen at the news, but feel OK about it today (just as well, nothing much I can do about it!)

Just to inject some amusement I have taken a couple of photos, which Mark (blogmaster) has reduced to a size suitable for this entry (I don’t have any photo-editing software with me). They are not works of art, but we had some fun taking them – I hate posing for photos – I won’t post any of the earlier ones! I hope it will reassure you that it is the right Peter whose blog you are following.


At least the weather has changed and it was a sunny St Pauls greeted me this morning, after a fitful night’s sleep. The main cause of this was the intravenous drip of saline and the consequential effects. I also felt very ‘fluey’ on waking up, aching joints, but these have eased during the day.

Breakfast was much as yesterday – the Calcium tablets have the finger pointed at them and although I nibbled two very carefully last night without ill effect, I have been very circumspect about them today!

To my surprise, the Cyclosporin was given orally this morning (and I had none last night) but that was a also a surprise to the Registrar n the ward round. He explained that the change back to IV was because of some of the other symptoms (which I won’t dwell on!!) which made uptake from the gut unreliable at the moment. My levels were OK yesterday, but perhaps now that the gastric problems are passing, I might stay on oral tablets. The main reason for keeping me here is to establish the correct dose: too high, risk of kidney damage too low, risk of GvH; so it is important to get it right!

My parents arrived to visit early in the afternoon, bringing with them a real home cooked food – a lemon drizzle cake – so we had ‘Afternoon Tea’ just before they left! (And you get to see my father’s talent with a camera)

I suppose I can’t really close without mentioning the food! Lunch was fish pie, looked OK, but the smell… and dinner which cottage pie and was quite tasty!

And finally, my fellow patient Mark’s count came up spectacularly and he went home for the weekend! (But will be back Monday) Don’t close off that tunnel, Mark, I’ll be right behind you!

4 Responses to “Sunday… t+17”

  1. Mark on 05 Feb 2006 at 7:05 pm #

    Hi Peter,

    Guess what, I’m Back! I got a call at 4 o’clock this afternoon (Sunday) to say my creatnine (I think that’s how you spell it) is high and I need fluids. They want me to stay tonight, but I’ve persuaded them to let me home once fluids are finished.( Still back tomorrow though) Now I’ve had a taste of home this is torture.

    I’m glad you’ve managed to stay on oral cyclosporin. Maybe that’ll mean you’ll be home sooner rather than later. I have to say that I’ve been feeling pretty nauseus too.

    Don’t worry, the tunnel is still open and I’m still crawling through it. Hopefully you’ll burst through some time next week!

    Mark (ex room 5, now room 1 with no en-suite!)

  2. Stephen Benson on 05 Feb 2006 at 9:25 pm #

    Peter:They just don’t want to let you go! In the context of the whole thing I guess afew days isn’t long. You look pretty good in the photos – you just need to change the ‘studio’!
    We have just got back from a w/e in Grange and had a lovelly walk on Saturday to Seathwaite Tarn – thick with ice which we tried unsuccessfully to puncture.

    Cheers
    Stephen.

  3. Elspeth on 05 Feb 2006 at 9:42 pm #

    Hi Peter,
    I am deligted that Mark is showing you the way to go home (congrats to him), so it won’t be long. When you finally make it out of the door, will you be keeping up your blog – please? (though one could not expect a daily issue when there are other things to occupy your time – like doing ‘normal’ living!)
    L’n’Hs
    Elspeth

    P.S. Thanks for the pics!

  4. Peter on 06 Feb 2006 at 8:50 am #

    Mark – Sorry to hear that; I’ll stop by later!

    Stephen – sounds wonderful – a throwback to VH days!

    Elspeth – Still under consideration, I am thinking about a ‘post hospital’ section while recovery continues, at least the first days.

    Peter