Peter’s Hospital Diary

I was hoping to post a few more photos from Katie’s ‘Birthday bash’, but I haven’t received them yet! My second course of ECP went well. I am getting the hang of the hospital accommodation, and decided that rather than go for an overpriced pizza, I’d get something from M&S (This is not just food…) […]

Yet again it has been a week since I last posted – and another busy one! Firstly I am sorry the blog hasn’t been updated, but I have had little opportunity to connect to the internet – and when I have, the server has been unavailable because of the ongoing network snags. I have now […]

It has been a while since I posted something with the ‘More Treatment’ tag, but today saw me back at St Thomas’s at the St John’s Dermatology clinic (originally founded in 1868 – and the only postgraduate dermatology teaching facility in the country) to look at the remaining GvHd. Now I must say that in […]

But what a difference from last time – no long faces, and new determination in the air! Perhaps that is my perception as my strength returns, but it has been a good day! We arrived late morning, at the day unit, only to learn that we needed to go to the clinic first, for bloods […]

Well, maybe not a new me, but certainly new experiences! It has been an interesting 10 days or so, and this will be a long post, so settle down and I’ll tell you about it! Mark was quite right when he said that I under-estimated how unwell I was. I suppose it came home to […]

I’m sorry I haven’t posted for a while. There was a milestone on Thursday, which was t+51, but also the anniversay of my admission to Guy’s for the procedure. I suppose If I had known what 12 months later would be like, I would have been disappointed, but hey-ho – I have survived another year! […]

And with the holiday well and truly over, it was back to work yesterday! However not without its trials and tribulations! I had a good weekend, appetite back, feeding up a bit (helped no doubt by the steroids that are part of the treatment) but yesterday evening the other side effects of the chemo started […]

It was an early start to get up to the Day Unit for just after 9am, for what promised (and turned out to be) a long day! I was feeling a bit tired when I got there – to the extent that it was remarked on, and the observations showed that my blood pressure was […]

A short post today, just to say that I heard from Rob (SPR) this morning, and we are going ahead with the chemo tomorrow. The plan is to get it all done in one day, although if I get a reaction to the Rituximab like last time, it may well be a long day! So […]

And the first visit to Guy’s of the New Year – and I’m sure it won’t be the last! However it was really good news on the blood counts, the GCSF has done its stuff and the neutrophils were up, as were the platelets. I am still anaemic at 9.5Hb, but I am certainly feeling […]