About… LeukaemiaCare

I have mentioned LeukaemiaCare in several posts in the blog, so I thought it about time I wrote a little bit about it…

I have said on numerous occasions how much I have appreciated the support everyone has given me during my ‘cancer journey’ but I am aware that many people are not so fortunate in having that support, and it was during my first transplant that I first heard about the LeukaemiaCare charity.

The Charity’s mission is “Supporting a Quality of Life” for the patients and carers of those with Leukaemia, Lymphoma and allied blood disorders.

Established over 35 years ago, the charity’s main function in support of the mission was (and still is) to provide a 24×7 helpline for people to ring with concerns or just a friendly voice to talk to. This was (and still is) unique among cancer charities. I have been trained and work as one of many volunteers that man the helpline, usually at night or at weekends.

While the Careline is the key service of the charity, there are many other activities it undertakes to ‘support a quality of life’. These include home and hospital visits by volunteeers, the provision of ow cost holidays, and more recently patient advocacy in highlighting new treatments for blood cancers. It has been particularly successful in raising the profile of Glivic – a treatment for Chronic Myloid Leukaemia.

Another important development has been establishing a training course in listening skills and helping people dealing with loss. Originally developed for ‘in-house’ training of new volunteers, the concept has generated much interest from some NHS hospitals and other health care professionals in the private sector (such as care homes). I have been involved in helping to put the training course together that can be delivered to those ‘customers’. At the moment the course is going through accreditation so that it can lead to an NVQ qualification, and I and my fellow volunteers in the scheme are looking forward to delivering the course once it is accredited.

Other services include a magazine – Focus – which is sent to all those registered with the charity, and a series of booklets covering various aspects of blood cancers. I have posted the last two (proof editions) of Focus here as pdf files for download.

That is only a brief introduction to LeukaemiaCare – there is more on the (soon to be updated!) web site, together with details of how to join, donate or fundraise for the charity.


2 Responses to “About… LeukaemiaCare”

  1. Peter’s Hospital Diary » Blog Archive » Friday… and 5 minutes of fame! on 26 May 2006 at 20:15 #

    […] Providing all continues to go well, I may be going back to work in August, which will give a chance to start getting physically fit again and pass recreational diving medical so that I can go on the trip to Cyprus, and start getting back to normal. I also have some work to do for Leukaemia Care including some training material and an article for their magazine “Focus” as a follow up to one I wrote last Autumn. There is a PDF version of that edition in the “About… LeukaemiaCare page. […]

  2. Peter’s Hospital Diary » Blog Archive » Saturday on 29 Jul 2006 at 11:36 #

    […] You may remenber that I have been doing some work on training packages for Leukaemia Care Leukaemia Care. This project has been ongoing for over 12 months, but at last we were able to present 2 of the 4 modules in a ‘dress rehearsal’. Theis went well, although there is still a little more work to refine them but it is good to see the project making progress! […]

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