Wednesday 21st August… Escape!

Yes, I managed to escape on Monday afternoon and I am now at my home with my parents visiting (and looking after me!).

I think I slept for over 10 hours on Monday night, and felt a lot better for it. I still feel a bit tired, but my Hb is still quite low and my mouth is still quite sore.

We have been out shopping, which has been OK, although the lack of left hand side peripheral vision takes some getting used to – something Im sure I will adapt to eventually. Its a question of situational awareness, and remembering where objects are although I cannot see them. But my conscious brain is already compensating for that, by generating a false image (as it does anyway) but the problem is with objects that move unpredictably (like people!) as there is no peripheral information available on the LHS to update those images. It’s just going to take time.

But it’s good to be home again. I went into the ward yesterday to pick up my “party bag” of which the most important was the ibrutinib. Alas it wasn’t there, and it wasn’t until I got home that I realised it was at the outpatient pharmacy. However Ihave to go in tomorrow for a blood test, so I can pick it up then – I have enough for another four days.

So a pretty grim week – the discharge notes did confirm neutropenic sepsis – and the minor stroke really was not welcome, as it is likely to have a major impact on my life (unless I do get some improvement over time), but I’m still here – and I hope moving Onwards and Uwards! 🙂

2 Comments »

2 Responses to “Wednesday 21st August… Escape!”

  1. Angela on 21 Aug 2019 at 21:36 #

    Glad to hear you are home and have had a good sleep. Takes time but I’ve got used to sight in one eye. I know it’s not the same but it is amazing what you can achieve.

  2. Peter on 23 Aug 2019 at 11:44 #

    Hi Angela,

    Yes, its going to take time to adapt (although I am noticing some signs that my brain is adapting already). Just need to be patient and hope that there is some physical improvement with the passage of time.
    xx

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