Friday 28 June… Going home!

Well, that’s the plan! I had an early ward round this morning with Dr Lown. It looks like a good response from the rituximab/ibrutinib combination and my blood chemistry is moving in the right direction, although maybe a bit more slowly than before. The theory is that the rituximab remains-sensitises the cells to the ibrutinib – the key is the combination. So I have another outpatient clinic on Monday. The midterm plan is to have rituximab every three weeks as an outpatient every three weeks for 3 or 4 cycles and then maybe move onto monthly or two monthly maintenance treatments – but that will depend on the response.

I was slightly alarmed to notice a patch of blood on my stylish NHS PJs this morning. It looks as if the injection of heparin (blood thinning drug as an alternative to compression sock to mitigate the risk of deep vein thrombosis) self injected last night bled a bit and I have a large bruise at the site! First time that has happened!

So all being well I am being discharged today once the last drip has finished, the paperwork completed and I have my party bag!

So I’m in good spirits – I was a bit down on Monday so thank you everyone who helped me pick myself up and continue Onwards and Upwards! 🙂

3 Comments »

3 Responses to “Friday 28 June… Going home!”

  1. angela hawley on 29 Jun 2019 at 16:56 #

    Good to hear that you should have made it home – gorgeous day for it! Can totally relate to the self injection drama – lol!

  2. Liz on 29 Jun 2019 at 20:42 #

    Hope you got your discharge papers!

    More seriously, I hope that you’re feeling ok, especially with the heat!

    Lots of love xxx

  3. Angela Hawley on 30 Jun 2019 at 7:53 #

    Good to know you are going home and have a plan

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