Friday 29th March… All going well!

I’ve had a couple of emails remarking on the fact that I haven’t updated the blog recently and was I OK? Actually all is going very well and there hasn’t really been much to say! I am taking my four tablets of Ibrutinib every day (along with one or two supporting medicines) and just getting on with life! I’m not aware of any side effects (I have read the patient leaflet very carefully!) and all seems well. My weight is increasing slowly and all is good. I think the fact that I am now only seen monthly is an indication that there are no immediate concerns about the drug.

I did have a sore mouth when I had my last check-up. Normally I take fluconazole to sort out that, but it is one of the drugs that interacts with Ibrutinib, so I was prescribed Nystatin in its place, which quickly solved the problem. This has helped eating, and has made swallowing the tablets and capsules much easier! I have also come off the steroids, and while there were a useful short term fix, high doses over prolonged periods do have side effects. The one that was starting to affect me was thinning of the skin, causing painful cracks on my finger tips, but they are starting to heal after three steroid free weeks.

It was my birthday last week and I celebrated at a Nepalese Curry house in Winchester – lovely food and a reminder of how much better my health is than it was 3 months ago!

So a check up in two weeks, and then possibly a PET scan sometime after that just to get an internal view of how things are going.

Meanwhile, Onwards and Upwards! Its a lovely sunny day as I write this, so time to go out and enjoy it! 🙂

2 Comments »

2 Responses to “Friday 29th March… All going well!”

  1. Liz on 07 Apr 2019 at 10:26 #

    So glad that you have been enjoying a hospital free zone!

    I hope the next check-up goes well too!

    Lots of love xxx

  2. Peter on 07 Apr 2019 at 17:08 #

    Thank you Liz! I’ll post the results on the blog.

    Hope all goes well for you too.

    Xx