Wednesday 6th February… More frustration, but maybe some progress?

I resolved not to chase things up today, so I was pleasantly surprised to receive a call from the the CNS office apologising for not calling me back yesterday, but saying the Ibrutinib was here and ready for collection – but she would check that it was in the outpatient pharmacy before I came out to get it. Great excitement – until I received a call 5 minutes later to say that it wasn’t there and it wouldn’t be here until next week. I don’t know if this is because of the conditions of supply or just a bureaucratic mix up, however I have a clinic appointment next Monday (supposedly to review how I was getting on with it) so I may be able to do some digging then – not that it s likely to speed things up. So somewhat unsatisfactory.

I do have a plentiful supply of the steroids so I’ll keep going on those. I suppose it doesn’t help that I have had a bad cold for the last three days, which is making me feel a bit lethargic (and wary, don’t really want infections at the moment (although I’m not neutropenic) but I hope I will be on the mend by the weekend.

So feeling a bit disgruntled at the moment, although I have some reassurance that the situation is being monitored more closely and I hope my name is near the front of the minds of all those people involved in the procurement!

And on the plus side – more toast and marmalade! 🙂

But, rather slowly, Onwards and Upwards.

2 Comments »

2 Responses to “Wednesday 6th February… More frustration, but maybe some progress?”

  1. Elizabeth on 06 Feb 2019 at 21:51 #

    Hello Peter so sorry to hear that you have not been well. I hope that you are feeling better today and am sending my best wishes XX

  2. Peter on 15 Feb 2019 at 12:47 #

    Hi Elizabeth,

    Thank you! Sorry for the delay in replying, it has been a busy week, but the medicine arrived yesterday after a bit of chasing! Feeling fine though!

    Peter
    xx

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