It has been a bit of a medical week! I went to see my GP for the prescription for the Clexane (to combat the DVT) on Tuesday and came away with 14 boxes of 10 injections (I thought I had finished the self injection bit with the last lot of GCSF last year) and yesterday saw me at the dentist for a bit of crown preparation work. But today was the biggy – the monthly check up at Guy’s, followed by a lung function test.
First off, it was good to see fellow transplant patient, mark, who was looking a bit sorry for himself as he has his leg in a brace, following surgery for a snapped achilles tendon. I did think he was about to take place in a mono ski race as the leg brace looked just like a ski boot! Hope it all goes according to plan and it comes off next month Mark!
During the chat in the waiting area we discovered a few more transplant patients, so a warm welcome to Linda, who had her transplant 10 years ago! To Sue who had hers last May, and also to Andy, who I met last year when he was being considered for a novel procedure, a transplant as a treatment for Crohn’s disease (which is an auto-immune disease). It looks as if that might be going ahead, so good luck Andy. Finally, ‘Hello’ to Mary who is on schedule to have a transplant in January (two years after mine – and Mark’s – how time flies) as treatment for a rarer type of Lymphoma, Waldenstroems syndrome. Mary and Andy received the full blast of our collective experiences, including the run down on hospital food (If you are reading this Mary or Andy, see the page top right on Hospital food!) and other tips from the old hands! Anyway good luck and we will all have our fingers crossed for you. (Just a quick note – if you want to comment and let us know how things are going, the first comment you make doesn’t appear immediately, but after that, they do)
My ‘chat’ went well, haemoglobin is up at 12.8, the highest it has been for a long time, and liver function is normal. My creatinine level is still a bit high, but stable, so that is good news too. And best of all, my next appointment isn’t for another 6 weeks! However, it is thought that I should have another bone marrow biopsy (first one in a while) in January.
After the haemotology clinic I went up for the lung function test. That was OK, gas transfer across my lungs is fine, but the spirometry (how hard I can blow, lung capacity etc) was a bit down, so that will be repeated in 3 months.
After leaving the hospital I went and had a pint with an old friend and work colleague (and my best man) Simon. A good catch up session over a couple of pints before he went back to work, and I came back home.
Tomorrow I am off to do some training for LeukaemiaCARE for the weekend, and then after my return on Sunday, we nip down to catch the overnight ferry to France for the week.
So….. Onwards and Upwards!