I have just been reminded by one of my readers that it has been a week since my last post!<\/p>\n
It\u2019s been a week of adjusting and, to some extent, recuperating.<\/p>\n
I went into hospital on Wednesday For the blood test and a chat with one of the Nurse Specialists, particularly a couple of concerns as one of my \u2018dodgy\u2019 lymph nodes seemed to be getting bigger. I also assured her that I was free for the rest of the week if any treatment was planned.<\/p>\n
The results were rung through later that afternoon: Hadmoglobin was about the same as before, neutrophils were up, platelets were also good, however my WBC is stillcreeping up, although not by as much as I had feared. Professor Johnson had reviewed Thame and had no immediate concerns, but the plan is to admit me for two days for a reduced course of cytarabine, which it is thought will give a good response while reducing g the side effects.<\/p>\n
I can\u2019t help thinking that it\u2019s a pity that we had the bank holiday as that has delayed things – I was hoping to have more retuximab, but I suppose a rapid de-bulk (again) May make the rituximab\/ibrutinib combination to get to work immediately.<\/p>\n
Meanwhile I have been adjusting to the loss of peripheral vision. I managed OK in hospital until I was leaving. I was walking along the left hand side of the corridor. scanning for obstacles when I suddenly stumbled (luckily no fall).<\/p>\n
I looked round expecting to see something on the floor I had missed, but actually a porter had pushed a(loaded) wheelchair in from the left, just behind me and I had tripped over one of the front wheels. I just didn\u2019t see him on that side.<\/p>\n
However I have had a small triumph today. As trains are likely to feature in my travel and activity plans, it seemed like a good idea to make sure I was IK getting to the station. So I tried it – and the first time I have ventured out for any length of time.<\/p>\n
I\u2019m delighted to say that I managed OK, and while taking it gently, it took about the normal time. There weren\u2019t many people about (they are a problem as their movements are unpredictable!!) so if I was getting of a train with crowds, I\u2019d probably wait a few minutes for it to disperse.<\/p>\n
But it was a useful test, hugely reassuring and confidence building, and it was good to get some gentle physical exercise.<\/p>\n
I have been very grateful to friends who have been to see me and take me out for lunch. It has been very much appreciated and made a big difference. Thank you.<\/p>\n
So I have coped this week and I feel better in myself and a bit more optimistic about travel. I am still thinking about an electrically assisted bike, but I still have some visual disturbances (false images) which should subside, so I may wait a while!<\/p>\n
But overall, I am more optimistic so… Onwards and Upwards! \ud83d\ude42<\/p>\n","protected":false},"excerpt":{"rendered":"
I have just been reminded by one of my readers that it has been a week since my last post! It\u2019s been a week of adjusting and, to some extent, recuperating. I went into hospital on Wednesday For the blood test and a chat with one of the Nurse Specialists, particularly a couple of concerns […]<\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3,6],"tags":[],"class_list":["post-2561","post","type-post","status-publish","format-standard","hentry","category-getting-my-life-back","category-more-treatment"],"_links":{"self":[{"href":"http:\/\/www.boraston.net\/blog\/wp-json\/wp\/v2\/posts\/2561","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.boraston.net\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.boraston.net\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.boraston.net\/blog\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"http:\/\/www.boraston.net\/blog\/wp-json\/wp\/v2\/comments?post=2561"}],"version-history":[{"count":0,"href":"http:\/\/www.boraston.net\/blog\/wp-json\/wp\/v2\/posts\/2561\/revisions"}],"wp:attachment":[{"href":"http:\/\/www.boraston.net\/blog\/wp-json\/wp\/v2\/media?parent=2561"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.boraston.net\/blog\/wp-json\/wp\/v2\/categories?post=2561"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.boraston.net\/blog\/wp-json\/wp\/v2\/tags?post=2561"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}