And it was up at silly o’clock yesterday morning, for a quick breakfast before starting my pre-PET scan fast! Then back on the well worn path to Guy’s again although actually a slightly different path as the trackwork NetworkRail are doing round Basingstoke meant that I travelled a different route – but that is by-the-by.<\/p>\n
The morning clinic followed the usual routine – bloods, a chat with the registrar (one I haven’t seen before – just returned from maternity leave and whose name I didn’t catch!) but she did confirm that the sore mouth and the slight skin rash is almost certainly GvHd – which is a bit of a relief – not that GvHd is desirable in itself, but it is evidence of the very much desired Graft Vs Lymphoma effect. As was pointed out, the Holy Grail of transplants is to get the GvL without the GvHd! After that it was a quick chat with Rachel – the fierce (not really!) dietitian, who beat me up severely for losing a couple of Kg since last time. However it isn’t all bad as I seem to be gaining strength as my grip is stronger, so I am building up muscle. Still – time to up the supplements. <\/p>\n
That was followed by a trip to the bank and then the pharmacy for another bag full of creams and potions for the inevitable skin problems. If I didn’t get my prescriptions paid for (retrospectively by my employer), I’d think about emigrating to Wales.<\/p>\n
It was then time to nip over to St Thomas’s, and my friends at the PET centre – particularly Margaret, the Unit Manager, and her team of radiographers! The PET scan was pretty routine, and I finally left at 4:50 to get the train back from Waterloo, grabbing a much needed sandwich from M&S on the way! (Selection was easy – look at the packets of the likely candidate sandwiches – ie, those that aren’t spicy – and choose the one with the most calories!) Overall not a good day on the calorie intake because of the fast.<\/p>\n
My next appointment is next Thursday and I am going to have to concentrate hard on not thinking about it. It is going to be a bit nail-biting waiting for these results – a lot rests on them. Still, it has to be done. If it is bad news, it won’t get better for not knowing! <\/p>\n
There have been a couple more comments on the patientline scam in this blog, and I have copied them to www.paytientcrime.org.uk<\/a> and I have closed the post here to further comments. Please post them on the new blog!<\/p>\n