Peter’s Hospital Diary

I have just been reminded by one of my readers that it has been a week since my last post! It’s been a week of adjusting and, to some extent, recuperating. I went into hospital on Wednesday For the blood test and a chat with one of the Nurse Specialists, particularly a couple of concerns […]

It’s been a strange week, but really good having my parents visiting and helping me out. Yesterday I went back to the hospital to pick up the Ibrutinib and have a blood test. I also took the opportunity to chat with one of the clinical nurse specialists (Amy) abut some of the otherside effects (i […]

Yes, I managed to escape on Monday afternoon and I am now at my home with my parents visiting (and looking after me!). I think I slept for over 10 hours on Monday night, and felt a lot better for it. I still feel a bit tired, but my Hb is still quite low and […]

Just seems I can’t keep away from D3! But it has been a couple of days since I last posted, so let me fill in the deatails! I was moved to my side room later on Wednesday, very nice too, but then the swabs came back as clear. I was told that it was likely […]

Last night, just before I went to bed, there was some concern that my nosy looked a bit runny, so before I could say ‘culture’ two swabs were taken, one from my nose and one from my throat. This morning I was woken by the sound of rusting paper of plastic sheets. And when I […]

It was a funny day for me yesterday, a couple of temperature spikes (more antibiotics) and a spell of feeling lethargic, but I went to bed feeling quite well. The person in the bed adjacent to mine is a snorer, but a set of earplugs sorted that! However, my midnight observations showed that my oxygen […]

Last week was trundling along quite well until I got to Friday when I started to feel a bit lethargic. I didn’t have any energy at all and didn’t get up until mid afternoon. On Friday night I developed a splitting headache – really intense – and not feeling at all well. So I ended […]

Yesterday was clinic day, but I hadn’t been given a time, soon fixed by a phone call, but it was an early one that didn’t give me time to give blood in advance. So I arrived at the allotted time, gave my blood sample and waited to be seen. And waited… and waited… and waited! […]

Yes, made it! After a day of nothing much yesterday, I finally saw the doctors and was allowed home! My blood pressure is still low, as is my red cell count and platelets (although both improved after the transplants) but as this is about a week after the cytarabine, this is expected to improve. I […]

I can’t quite believe I have been here for a week! Definitely time to go home! I had my unit of blood last night Much the same as the platelets, but a much darker colour! However the transfusion was not without its moments and an hour in to the three hour transfusion I suffered ‘Canula […]