Archive for May, 2019

Friday 31st May… Wet wet wet!

No, not the weather, but me yesterday as I got back in the water for some diving. My medical certificate came through this week, so it was the first opportunity to get back into the water since my relapse. I did do a bit last year, but tis was a chance to do some drills and get used to a couple of new bits of kit. Im also doing a boat dive next week as part of the 75th D-day celebrations.

So it was off to Vobster Quay at a reasonably civilised hour with a dive buddy for a couple of 30 minute dives.

Vobster Quay

It doesn’t seem much time under water, but part of the fun is being out with like-minded individuals with a common purpose.

Me in my wet suit!

We did some drills which highlighted a (fixable) problem with a new mask, so it was good to find that out in the more benign environment of a sheltered water site!

I was quite tired when I got back – a combination of physical exertion, and fresh air, but a sense of satisfaction! The only downside is getting all the kit dry when I got home, but it was fairly sunny in the evening, and it got reasonably dry – Ill be hanging it on the line this morning to finish the process.

And for those that are interested, this is one of the dive profiles!

So while yesterday, diving might have been onward and downward, overall definitely onwards and upwards!

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Friday 24th May… All quiet!

Not a lot to report on the health front – still popping my four tablets a day without an apparent side effects. On a health related note though, I have been told that I can continue diving and Im waiting for my medical certificate as I write this.

In other news, I spent a fun four days in France last week. Mark (fellow blogmaster who has featured here before) and I went to his house there where we did a bit of work in converting an attic

Before

And after

area into a bedroom (a lot more to do – that was part of one wall!), as well as mowing grass and some swimming pool maintenance.

The pool

All good fun and a change from my normal daily routine! All part of ‘getting my life back’ to normal.

Onwards and Upwards!

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Monday 13th May… Check up and blood results!

So a quick trip into Southampton today, where I saw Professor Davies – the last of the three haematology consultants and someone I hadn’t seen before. They all seem very keen to see me – or maybe they draw lots and he got the short straw. Interestingly he trained with Dr Welch, the last consultant who saw me at Guy’s.

Anyway, blood results were all good – creatinine was lower, although not as low as I had hoped, but definitely a downward trend. There are no reasons why the Ibrutinib should stop me diving, so I obtained a set of bloods for the diving medical referee, so I can apply for my medical certificate… another positive step.

And my next consultation is in two months, although a blood sample is required in a months time. And finally, it was decided that they would like a CT scan, scheduled for some time in the next 6 weeks! We did have a discussion about CT and CT/PET scans – CT onlty are less expensive, and Guys are at the forefront of PET scanning (Professor Davies knows Professor Sally Barrington – a pioneer/ambassador for PET scans at Guy’s)

So I came home very happy and definitely feeling that things are going Onwards and Upwards! 🙂

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Sunday 12th May… Let the sun shine on!

It’s a lovely sunny day outside, after a mixed week, both of weather and activities!

You may recall from the last post that although two months of Ibrutinib had been prescribed, only one had been dispensed. I sent an email to the Clinical Nurse Specialists who rang back to say that at the time the script was written, the pharmacy didn’t have sufficient stock to dispense two months, but the second month had been issued and was ready for collection.

So, armed with that knowledge, I popped into the hospital on Thursday to pick up the next months supply and have my blood sample taken ready for my appointment tomorrow. I have been making a an effort to increase my water intake, so I hope my creatinine levels will be lower and closer to my baseline level. I also want to ask whether I can carry on diving while taking Ibrutinib.

Friday was a sad day – going to the funeral of my cousin Margaret (first cousin once removed). I travelled up to my sister and then we travelled together to Birmingham. She was a remarkable lady and it was good to meet some of her relatives and celebrate her life.

But life goes on – and as always, Upwards and Onwards!

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Monday 6th May… Bank holiday Monday

Its been a few weeks since I last posted, and I’m glad to say that all is still going well, with my next check up next week. However the bank holiday means that there will be a five week gap between appointments and prescriptions and I run out of medication next weekend. This was anticipated by Dr Lown at the last check up and my last prescription was written for two months supply, but only one month was dispensed, so I will be asking for an early prescription so I can collect it (and do a blood test) before the next clinic.

I was reading back through the recent posts today, and I noticed that back in January I said that there were two possible diagnoses – one was that the mantle cell lymphoma had developed into a Blastic form (BMCL) or it was a new lymphoma, Diffused Large B Cell Lymphoma (DLBCL). I didnt explicitly say that the diagnosis waa refined down to the Blastic form of mantle cell lymphoma which is why I was a candidate for the Ibrutinib.

Meanwhile, I had a great Bank Holiday Weekend, with a 60th Birthday party of a friend from my university days! Great party with some other uni friends there, so a lovely catch up. I was thinking on the way back that I am vey blessed to have such supportive friends who are still in touch with me (and that I am still around to see them!!). I have another reunion with the friends I shared a flat and house with in those days, so that will be a good weekend later this year.

I must also thank other friends (some of whom live locally) who have been very supportive and of course my lovely children. 🙂

So … Onwards and Upwards! 😀

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