Thursday… good news
Jul 31st 2008PeterGetting My Life Back!
Unbelievably, I have been back a week, but it has been fairly eventful one. After the weekend of BBQs, I was back at work for a day, and then up to London for another round of ECP. All getting routine now and no problems. I got home on Wednesday in time to go out for a few leaving drinks with some people from the office. I did stay out rather later than I anticipated, but it was a good evening.
This morning I was off to London again for my delayed haematology appointment. It should have been two weeks ago. I saw Dr Kazmi who was pleased with the way things are going. My weight is up by another pound at 10st 3lbs, steady progress! No lumps found, and we discussed having a PET scan (it is 12 months since the last!!) sometime in September. And luckily I had bloods checked on Tuesday, so I didn’t need to have them taken again today – just as well after last night! They are much the same as before – kidney function is about the same with creatinine levels much the same as last time. Liver seems OK too!
I also asked a couple of general questions – about my overall progress, given that it is nine years since I was first diagnosed and that Mantle Cell Lymphoma is a particularly ‘difficult’ disease. The answer though was as I expected – some patients do better than others – and there may be lots of factors involved – although he did say that he was worried 18 months ago (he wasn’t the only one!).
So perhaps it is better not to question why – but just be grateful that so far things are going well. 
May that continue – Onwards and Upwards!