Tuesday
Jun 12th 2007PeterGetting My Life Back!
Not much to report on domestically – we did some work in the garden on Saturday and Sunday morning (I say we – mine was very light work! 0 and enjoyed it on Sunday afternoon when the sun shone! Olivia came over on Saturday (with Vicki!) but she was a bit tired and fractious so no photo opportunities. I have done a bit more re-arrangement of the gallery, starting to subdivide the Olivia Album into month by month sub-albums. I’m not sure if it is an improvement though, as it makes scanning all the thumbnails a bit time-consuming, so I may go back to the previous style (comments please!)
Just after I wrote the last post, I went to John’s Blog which rather put my woes about my mouth into perspective. John’s problems were mainly caused by Chronic GvHd (with one or two other complications) and is a reminder of just how debilitating it can be (warnings that the team at Guy’s did make). However I initially found John’s last post a little disquieting as John has always been a fighter, and at first I thought that he was giving up the fight! However on re-reading it, I realised that I had mis-interpreted the spirit of it, as it took me back to my dark couple of weeks in January, and my feelings then. With hindsight I can see the difference between ‘acceptance’ and ‘resignation’. It is a fine line, but I see acceptance as being accepting of things as they are, it does NOT imply giving up, while resignation (to me) implies giving up! So I know that while John may accept his situation, (and so will move forward) I know he won’t be giving up the fight! We are all behind you! (Behiiiiind you…. – sorry – it isn’t panto season yet!)
So crack on John – and apologies for (briefly) doubting you! 
Meanwhile there has been some activity on PaytientCrime with two comments from a PatientLine employee. they were attached to one of the earlier posts, but I have moved them under my latest post. He/she makes some interesting points. On the subject of paytient crime, I’m not sure that a blog is the best format for it, a message board/forum might be better, so I will be experimenting with that when I get a moment; the problem will be migrating the data across.
I have finally received my appointment with the oral team at Guy’s! It popped through the door this morning – and is scheduled for 12 July! My mouth seems a bit better today, but I have been treating it gently. This has paid off as I enjoyed a bacon sarnie this morning!
I’m still undecided about re-naming the blog – ‘Peter’s Diary’ is probably my favourite contender at the moment!
Onwards and Upwards!