Archive for January 14th, 2006

Good news

Well so much for saying that I was settled in my room! Just after the last post, we had a ward round and it was pointed out that the room next to mine (and the one I had last year when I had the second self donated transplant) had became free, and as it is a bit bigger, could move if I wanted to. So I have! It isn’t quite as cosy as the last one, and the view isn’t quite as good, BUT - the telephone line allows 0845 numbers so I now have dial up internet! A great improvement and one that will make updating this blog a lot easier.

The TV picture is a bit flakier with the internal areial but I hope the Freeview box will help sort that out if the digital signal is good enough. Katie should be bringing that up on Monday, so I can try it out.

One visitor today, David, an old friend from pre-primary school days! Pre-primary school - I won’t even think how long ago that was!

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The Weekend

Well, the first few days are over - I’m now settled in the room, with one or two things accomplished. The TV, which was on a bracket 8 feet above floor level is now at comfortable viewing level, although the internal aerial gives uncertain reception! I have a spare Freeview box at home, so that may improve matters if I can get it brought up here!

Internet access remains fraught. The problem is that all 0845 numbers are barred at the hospital exchange. My consultant and nurse specialist are working on the case, meanwhile I have limited access through the mobile phone.

The treatment is continuing with the current two chemotherapeutic (spell that after a couple of pints!) agents, Fludarabine and Campath (the latter is a monoclonal anti-body) with few unpleasant side effects (so far). There is another one due (which I won’t attempt to spell without looking at the drug chart) which has more side effects; the drugs to counter nausea are very effective, but there are none to counteract the hair loss! I expect that it will remove the little fluffs of hair that is just starting to grow back after the debulking chemo before Christmas. Ah well, I’ll save on the razor blades!

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